Our Bittersweet Journey
Going Home
Yes you read that correctly. We are going home...at least three of us are. Zoe, Isabelle and I are going home.Zoe and Isabelle have been making major strides and the doctors are confident that they are able to go home. Both girls had their caffeine discontinued last week and have had no episodes of apnea or other difficulties. Both girls are taking all of their feeds by mouth. Both girls are ready to go home.
Adam and I are beyond excited and scared out of our minds. Will the girls survive off their monitors? Will we be able to recognize the signs of something going wrong? Will we be able to handle their needs at home? We've been wishing for this day but now that it's here, we simply do not know how to feel...
Friday, October 25, 2013
Happy Birthday Popa Tom! Your present is Zoe and Isabelle coming home! Friday afternoon we packed up an entirely overfilled Suburban along with Zoe and Isabelle and made the trek back to Eau Claire. Before we left, I was holding Cecilia having an incredible time leaving her. Thankfully Patti was her nurse, and she was able to take Cecilia from my arms so we could leave. I cannot describe how heartbreaking it was to leave the NICU without her.Humpty Dumpty Surgery
Cecilia will undergo her Humpty Dumpty Surgery on Friday, November 1, 2013. She hit the magic number of 1900 grams on Monday and was 2 kilos today. Dr. Ishitani checked on her and said she's ready to be put back together.
Friday she will go back downstairs for her sixth, and hopefully last, surgery. The surgery is quite complicated and extensive lasting approximately 5-6 hours from start to finish. Adam and I will make the surgery back to be with Cecilia and would appreciate all of your prayers for her safe keeping during this time. Zoe and Isabelle will spend the day with Grandma Jan (we are incredibly lucky to have Adam's mom staying with us while we learn how to parent our girls).
Thank You Grandma Jan
We could not do this without you.Love,
Adam & daneille
So happy you'll be able to come home with 2 of the girls, we'll keep positive thoughts about getting to bring Cecilia home for the holidays!!!!
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